14-month-old Baby Needs the World’s Most Expensive Drug to Stay Alive


Ayah Lundt was diagnosed at nine months with a rare degenerative disease. Muscular atrophy type 2 (SMA), a disease that affects mostly infants, has Ayah’s parents under pressure to find $2 million to cover treatment for this rare disease.

Zolgensma the drug that is used in treating muscular atrophy type 2 (SMA) is a one-time treatment drug. It is use for children under two years old.

Mary Mithika, and dad, Frank Lundt, Ayah’s parents, need to raise the money for this treatment before their daughter becomes two. They have been trying to do so through a go-fund-me account which have generated $60,000 so far. They also have family and friends who are helping via their social media campaign, “Friends of Little Ayah”.

Baby Lundt was diagnosed with spinal muscular atrophy type 2 (SMA) in November 2020. SMA is a rare genetic disease found in 1 in 10,000 children across the globe which kills nerve cells and causes infants’ muscles to deteriorate. It can lead to difficulty swallowing or breathing. Usually, children diagnosed with SMA do not survive past early childhood due to respiratory failure.

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